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Wednesday, August 20, 2014

Endless paperwork

As I get ready to start another school year and attend yet another 504 meeting, I am astounded by the amount of paperwork that needs to be filled out.
I do not understand why year after year I have to fill out the same forms. This year there is even a new form. I am not sure why there is a new form but there is one. It pretty much asks the same questions as the other paperwork does. This means more wasted time filing out forms, getting doctors signatures, and so on. Of course I will do whatever it takes to keep my child safe but this is insane....
Are you filling out piles of paperwork too?

Saturday, August 16, 2014

One more week

One more week off then school starts. I have my paperwork in order, epi etc is ready to be dropped off at school. Just waiting on the yearly 504 meeting.....
Going to work on safety AND inclusion this year. We learn as we grow I guess.
Are you ready for this school year? What do you do to make sure that your child is safe and included?

Monday, July 28, 2014

A big event with allergies

We have never had to worry about a big event with allergies, it just hasn't come up. Until a few weeks ago. We had our oldest daughters Bat Mitzvah. That meant lots of planning for my youngest so that she could be completely safe and so that I could somewhat relax. From deciding how to get safe juice and challah to the Temple to the entire menu at the reception, we sure had our hands full. It truly took a village! Thanks to all that helped us. Everything was pretty much nut free. Any event over the weekend that was not nut free, we brought food with us like we usually do.
The whole weekend was smooth, safe, and amazing!

Have you ever had your allergic child at a big event? How did it go? Any tips on how to handle it?

Friday, June 27, 2014

School nurse success and stock epi update

A huge congrats for Teri Saurer. She has worked tirelessly to get a full time school nurse in every school Charlotte schools. It's so great to share the news that she did it! She is a trailblazer and I am so excited for her and her whole team!
http://www.allergyhome.org/blogger/school-nurse-advocacy-success/



The stock epi bill needs your support! If you are in NC please write the Senators below and encourage your friends and family to do the same. We really need a huge push in the letter writing department.

1. Senator Jeff Tarte
jeff@jefftarte.com 

2. Senator Harry Brown
Harry.Brown@ncleg.net
910-347-3777
NC Senate
300 N. Salisbury Street
Room 300-B
Raleigh, NC 27603-5925

3. Senator Kathy Harrington
kathy.harrington@ncleg.net
919-733-5734
NC Senate
16 W. Jones Street, Room 2113
Raleigh, NC 27601-2808

4. Senator Neal Hunt
neal.hunt@ncleg.net
919-733-5850
300 N. Salisbury Street, Room 309
Raleigh, NC 27603-5925

5. Senator Brent Jackson
brent.jackson@ncleg.net
919-733-5705
16 W. Jones Street, Room 2022
Raleigh, NC 27601-2808

Wednesday, June 18, 2014

Summer, events, and relaxation

Another fast school year is over.
We made it through the last party and now I can relax. We are together just about 24/7 so there really isn't any extra worry. Just the regular worry. I just read a study that said that allergy moms have anxiety and stress. Really? I didn't notice. Gotta laugh about that one.
We are planning a very big event this summer. That's stressful. Fun but stressful. It is great though to work with a large event hall that is very flexible about allergies.

Tuesday, June 10, 2014

The last party

The last party is over. I will never be more stunned as when a parent goes out of their way to make sure there are safe foods. Well, it happened again. Peanut/treenut free cookies! They are sooo good and they made her feel so included.
It's nice to have a safe item. I think it helps take the sting out of the unsafe cookies and candy that was there.
It's time for me to start thinking about our 504 for next year as I have already talked about. Inclusion, inclusion, inclusion in addition to safety.
Candy awards were handed out. My daughter got the "starburst award". It's a very cute idea until someone gets the "almond joy" award. Not cute.
One day everyone will "get it"
Until then we work harder....

Tuesday, June 3, 2014

One week to go

School ends next Wednesday. Yay!!!!!
The end of year party is Monday and parents are invited. Yay again!!! Less to worry about.

Like I said the last time that I posted the eczema was back and it was bad. I tried everything. Now the eczema is gone. Out of nowhere gone. Sooooo strange! Have you ever had that happen?